There are several ways to raise money and raise awareness but one girl from Mount Pleasant literally took her idea to almost 20,000 feet.
12-year-old Mackie Black went on an adventure of a lifetime while the Lowcountry was battling a snow storm.
Mackie, her mom, and a close friend flew out to Africa to the famed Mount Kilimanjaro in Tanzania.
Mackie’s mom said it was like stepping into a national geographic documentary, “Hiking for six to eight hours up the mountain in extreme temperatures was intense enough to pull some tears out of both of us.”
For seven days straight between four to six hours a day, Mackie was able to reach the top of Mt. Kilimanjaro trekking 19,341 feet.
But the motivation for Mackie was just as intense as the climb to the top, “I thought it would be a good idea to raise money for my brother and also it would be a lifetime experience.”
Mackie’s 10-year-old brother, Steven, is battling an incurable form of muscular dystrophy called Duchenne.
“Duchenne muscular dystrophy is a progressive muscle wasting disease. It affcts one in 3,500 live male births. Usually boys are diagnosed between the ages of four and six and go immobile between the ages of nine and 12. Steven is 10 right now so we are kind of in a transition period,” said Mackie’s mother.
The trip to Mt. Kilimanjaro was organized with the help of she-climbs.org.
The website helped to raise money for Duchenne and raise awareness that it desperately needs to find a cure.
“It’s sort of hard but at the same time, usually people my age who have Duchenne are in chairs. So, it’s a dream come true that I’m still walking,” said Steven.
Next year, Mackie plans to take her brother with her as Steven also wants to make the trip to Mt. Kilimanjaro.